I apologize now for the short journal entry but I have had several nights of no sleep and am very tired. We appreciate all the wonderful e-mails, guestbook entries and prayers for our girl during this difficult time. Kennedy is no longer in the PICU. I’m sorry we did not post sooner-she was able to leave and go the schoolage unit on Saturday with many, many orders and only on the condition that her respiratory function improve. She still is receiving the Bi-Pap every 4 hours but can go long periods without her oxygen mask. We are turning the corner for sure. They are placing a PICC line tomorrow because after 5 failed IVs, and more than 30 attempts, I put my foot down and demanded a better means of giving her meds. She is too unstable for heavy sedation/surgery, so this will be performed Tuesday in Day Treatment. Because everyone knows so little about the Defibritide, it must not be combined with other meds or TPN. She is doing much better and appears to be on the mend. She has also been upgraded to Serious but Stable condition. I will write more tomorrow.

Here is to a full 6 hour stretch of sleep-may it be mine!

Mel