• Treatment

    Just another day in paradise…

    Well, here comes the rain again…sounds familiar. We had several days of dry but very cold weather so it was nice to have the mud return to solid ground. Now, though, the rain has begun and once again returned our place to a giant mud hole where boots get stuck and the my kitchen floor goes from white to red in a few hours. Ugh! Ok, enough whining! On the Kennedy front though things are going along at their normal pace. Her incision has healed remarkably well and I will be giving Dr. Bliss (yes, that is really his name) a call and letting him know about her progress. He…

  • Treatment

    Please pray for Gage

    If you have been a reader of this blog for very long, you know about Gage. He was treated for Ewing’s Sarcoma while Kennedy was in intensive treatment and we had the opportunity on more than one occasion to get to know him and his mom (and his dad sometimes) through being inpatient, the DTX and in the clinic. After successfully going in to remission, 6 months post treatment he was diagnosed with treatment induced AML (another form of leukemia than Kenne’s) was needed a bone marrow transplant. He again beat cancer and seemed to be doing well. However, today, during routine scans, a mass was found in the original…

  • Treatment

    Things are going great!

    Sorry for the lack of update after surgery. Kennedy was such a trooper and we are so proud of her! There was a bit of confusion about where we were supposed to be (apparently they had scheduled her for DTX at 8am but no one called us and we went to short stay at 9am like we were told.) It worked out but it would have been easier to be there at 8am and get her Pentamadine done before surgery. Everything came together though and it was fine! The surgical nurses went on and on about how mature she was…more like a teenager really. She wasn’t worried or anxious and…

  • Treatment

    Surgery on Thursday

    We met with the nurse practioner today to go over Kennedy’s surgery on Thursday…basically we drove an hour, waited 50 minutes for about a 10 minute appointment. Ugh! They didn’t even do blood work, odd for us after the fact that every single appointment she has had at Emanuel for the last 2+ years has required a port access and blood work. She basically let us know what is involved in a port removal (not much) and that Kennedy would be down in surgery approximately an hour then when she woke up they would be taking her to the Day Treatment Unit (DTU) for meeting with the oncologist and get…

  • Treatment

    We’re Finally Back!!

    Oh, to be writing again! How good it feels! I apologize as I think this is the longest I have been away from writing on Kennedy’s site ever. We changed internet providers (no dial up for us! Oh, no…we are in the 21st century, baby!) and when that happened I somehow lost my password to Kenne’s site. I had just stayed on and not logged out and when I went back after changing, I could not for the life of me remember the password. My dear friend, Becky, is the administrator and we have both had such full plates the last few months that we never got in touch to…

  • Treatment

    To Laughter

    Like a ray of sunshine piercing storm clouds She shines in the darkest days Facing Hell’s demonic wrath with the courage only a child can muster Unaware, death is lurking behind every curtain every door Her hair no longer crowning her head Her eyes dance deep in their sunken caverns Scarlet as a red bloom her cheeks burn with an inner fire Yet she laughs and her delightful sound echos off sterile white walls down halls reeking of hopelessness and despair it revirberates from IV poles and bags of Methotrexate and platelets Her laughter, her giggle, her hope midnight is lifted by the melody Eyes turn, ears hear and hearts…

  • Treatment

    Yes, another update!

    While I should be writing for my literature class…I am finding ways to avoid it and this seemed like the perfect place to start! That and I am truly trying to be better about updating… Here we are…two weeks off chemotherapy. Kennedy had her very last pill, last lumbar puncture and last bone marrow aspiration. All went off without a hitch and Kennedy was cancer free on August 23, 2007. Whoo! With gifts and balloons and a very grumpy girl we said so long to cancer treatment. I thought I would be terrified…remember my last post? In some ways I am but in many ways I am excited and full…

  • Treatment

    Thoughts on Ending Treatment…

    I was going to take this time to update on Kennedy’s medical front but with her off treatment day barreling down, I thought I would take this time to reflect on some of the thoughts and emotions that are weighing on our minds and hearts… “Off Treatment” no words ever sounded so glorious and so terrifying at the same time. As we sat in that family room in one of our first meetings and heard Dr. Chu say that Kennedy’s off treatment day was more than 27 months away our hearts sank to our knees. We could not comprehend the idea that Kennedy had cancer or that her treatment would…

  • Treatment

    More News From the Front…

    Let’s see…where did I leave you all hanging…oh, yeah…what we have been up to fun wise…what else have we done…we’re finishing up rodeo season. Oh, we attended the first 10 mintues or so of the Grand Floral Parade…that is actually a funny story now! We went early (as always) to hang out and visit with my auntie Sue and Ashley while we waited for it to start. We had a blast despite the pending showers and crummy weather (why is it always either rainy or smokin’ hot?) and enjoyed blowing bubbles, drawing with sidewalk chalk and eatin’ but as usual the parade did not start on time and by the…

  • Treatment

    We are really here!

    I can hardly believe that it has been so long since I updated this site. WOW! Is there anyone out there still reading? I do hope so! Actually, there must be as I have had several e-mails from you all wondering what in the world is happening around here 🙂 Well, since February…a lot! Lots of good and some crazy stuff and of course, the usual as well. I have been continually amazed at how much life can start to seem like normal again. Instead of cancer being a constant in our lives, it comes and goes and comes and goes. I know after talking with other families post treatment…