• Treatment

    Finally…an update!

    Sorry about that…time just simply gets away from me! I want to be sure I have enough time to actually right an entry rather than just a quick stop in so that can be a reason (or excuse, depending on how you look at it) why it takes so long. Since I have received multiple emails regarding the MRI (and you know who you are!) here is what we know… Good news! No AVN! That was fantastic. Everything looks fine as far as bones and tendons so that was great! The part that drives me crazy…is that we don’t have a clue what is causing the problem. We have ruled…

  • Treatment

    3 years…

    Wow! Three years today…let’s see, I believe Kennedy and I were still in Newport at this time…she was not feeling well…running a low fever and kind of dragging along. I was focused on getting my stuff done and a little annoyed that I had to carry her everywhere…I was NOT going to win Mother of the Year in 2005! She had been whiny for a couple of weeks with no obvious explanation other than she was 4. But then, off to the bathroom we went and with a toilet full of blood there was no denying that something was terribly wrong with Kennedy. Now, I will not rehash all the…

  • Treatment

    Another Update with More Info Coming Soon

    I apologize for not updating sooner…school is kicking me in the behind…big time! My grades are fine…I’m just having a hard time keeping up on my life. Kennedy is doing pretty well. Last month she had her 8 month post treatment check up and things are looking relatively well on the cancer front. Her red cells have not fully recovered (they are larger than normal) but they do not seem overly concerned about it. I am concerned, however, about the neuropathy issue and the lack of concern on their part. When I asked about seeing a neurologist, their comment was that they would not be able to tell me anything…

  • Treatment

    We’re Still Here…

    We’re just rolling along at break neck speed. You know…same old day…same old grind. Actually we have been passing around the bug that seems to be crushing the NW. Grammie had it for several weeks and the rest of us have managed to only have it for about 10 days with Austin and Keith being the last to get it. It was weird, though, Kennedy had her first post-port-removal fever and I had no idea what to do with myself. No hospital stay and not even a trip to the clinic. We did go to the pediatrician though…fevers still bring on lots of fear. We’re not sure why she had…

  • General,  Gratitude

    Thank you…

    I so appreciate all the moms who emailed me privately and/or posted in the guestbook to let me know that not only are my feelings totally normal but that they understand. Nearly everyone was the mother of childhood cancer survivor or patient. They really know this area best. They were also the ones I was most afraid of offending by my post. Thank you…thank you for not being judgmental. Thank you for “getting it.” Thank you for lending an ear and a shoulder. I really appreciate all of you…these are the moms whose children were fighting the same time as Kennedy. They are the same moms who are also dealing…

  • General,  Gratitude,  Treatment

    Two Topics

    Yes, I have two separate things to talk about…oh, where to start…this should be a long one…are they ever short?? Hmmm…Kennedy had language therapy today (lt or slt) and did well despite being tired. Her random “holes” became evident when today her processing was right on! Sometimes not so much but today it was and the “holes” were somewhere else! Her processing you say? Why, yes, I did say that! JR and Kennedy played Slamwich! and Kennedy was right on the money. Visual processing, mind you, but processing none the less. Wow! She was taking names and kicking butt! Then later I gave her what seemed to be a simple…

  • General,  Treatment

    Feeling Better

    It’s true…I am feeling better. I’m still not happy about the situation, but I am not feeling super angry or like having a pity party anymore. It’s time to pick up the pieces and move forward. Ultimately, my goal is to raise Kennedy in to the very best woman she can be…whatever that is. I want to take her strengths and help her to use them to the best of their ability and to help compensate her weaknesses as much as possible. I also want to give her tools to navigate through this world and teach her to be able to ask for what she needs and wants in an…

  • Treatment

    Oooh How I Hate cancer!

    No, Kennedy’s cancer is not back (Thank God!) but I hate it anyway. I just hate it and I wish I could spit in it’s face! I honestly don’t think this experience will ever go away. It just has lingering effects that are constant reminders of what happened. Tonight, I am going to throw a pity party for myself. If you just don’t want to go there…tune in a couple days when I am over it. Kennedy had her 6th off treatment check-up today. Wow! Nearly 6 months off treatment and still cancer free! That is worth praising for sure. For that I am so grateful. She is growing, her…

  • Treatment

    How is Kennedy you ask?

    Ok, so that last post with today’s date was not really written today…didn’t think so, huh? It was actually from more than a week ago but I had not finished it and since I wanted to write about things that have happened since, I decided to publish it anyway. So, here is the latest on the Kennedy front… Kennedy did have her eye appointment and it went so much better than I had anticipated! She didn’t cry or pitch a fit, despite the fact that I knew she was very uncomfortable and very anxious. She answered most questions clearly, the ones she understood at least, and I helped with the…

  • Treatment

    Not Rain…But SNOW!!

    Yes, I know that I said it was raining the other night…and it was! It was nearly 40 degrees when I went to bed and RAINING! However, when I awoke the next morning at 8am (the perfect time to rise, btw) there was 4 inches and it was still coming down 🙂 The total so far? A glorious 10+ inches of snow with more predicted! It is SO beautiful and if you head on over to my other blog you’ll see it there. It is so amazing to see God’s handiwork…it is as if everything is coated in a lacy veil. Just awesome. Cold, but awesome. The kids could hardly…